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Getting participant permission to store data in cloud (non-university-controlled) servers

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Browsing: Getting participant permission to store data in cloud (non-university-controlled) servers


Rick Gilmore

Posts: 5
posted

Hello,

My institution will soon require researchers to secure consent from participants to store research data in non-university-controlled cloud servers like Box, Dropbox, AWS, Qualtrics, and Databrary.org, for example.

Are others aware of similar trends at other institutions?

Rick Gilmore

John Torous

Posts: 8
posted in reply to rick gilmore

It is not required here at BIDMC, but we use AWS for our studies anyway as its easier and more secure.

Sara Meeder

Posts: 20
posted

Our institution didn't require consent regarding use of cloud servers, but the expectation is that we make sure our participants have enough information about the security of their stored data to make an informed decision about participation. Currently, we have security info in an educational document embedded in the confidentiality section of our consent form. I don't believe it specifically mentions a cloud server by name, but that may change as we move from the pilot study to rolling out our main study.

Best,
Sara Meeder