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Ethics & Security by Design and the EUs General Data Protection Regulation

privacy wearable sensors

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Browsing: Ethics & Security by Design and the EUs General Data Protection Regulation


Anonymous

posted

Interesting article in SportTeckie that may have implications for informed consent in the US pretty soon - generally and in research involving human subjects. Thoughts?

http://www.sporttechie.com/2016/11/09/fitness/how-body-scanning-is-impacting-athletes-and-the-legal-ramifications-of-this-technology/

Sara Meeder

Posts: 20
posted

Thanks for posting! Has anyone been working on GDPR compliant consent forms?

Camille Nebeker

Posts: 40
posted in reply to sara meeder

Good question - perhaps one of our IRB or privacy experts will chime in.

Sara Meeder

Posts: 20
posted

Discussions with my team about the ramifications of GDPR for our project came up with the following:

https://ico.org.uk/for-organisations/data-protection-reform/overview-of-the-gdpr/individuals-rights/

https://iapp.org/news/a/how-gdpr-changes-the-rules-for-research/

https://wellcome.ac.uk/sites/default/files/new-data-protection-regulation-key-clauses-wellcome-jul16.pdf

We're still looking into it, but I'd love to hear from anyone else who has been exploring the issue.

Camille Nebeker

Posts: 40
posted in reply to sara meeder

Here's a JMIR paper published today on GDPR and research: http://www.jmir.org/2017/2/e47/