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Ethics of publishing with a patient

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Browsing: Ethics of publishing with a patient


John Torous

Posts: 10
posted

Hello,

A patient with schizophrenia approached me about about a tehcnology innovation he created to help manage his care. The patient has no comemrical interests in this innovation, which is essentially a digil tally counter to count how many voices he hears per day and how that chnages with medicatios. His story and use of technology use makes for an interesting case report which highlights how patients with serious mental illness can have an importnat role in health tehcnology. This patient is very open about his diagnosis and has publically posted his name and diagnoisis on several internet forums and wesbites. Together we met several times and co-wrote a case report based on his technology use.

I am writing the group as my question is are there any ethical concerns I have not considered in seeking to publish this case report as co-authors. I have never seen this done before for serious mental illness and so wanted to check with CORE members to get feedback.

Thank You,
John

Patricia Arean

Posts: 4
posted

if the person who created the app os a co-author its assumed he has given permission to have you discuss in a paper . in fact there are good examples in the literature of consumers being authoes on papers. If not an author but discussed in your paper, you need to have him sign a release saying its Ok to talk about his case most peer reciew joirnals have templates for this (particulalry jounrals that publish case reports).

oh and for examples from the mental health field please read KEN WELLS and Bowen CHUNGS work they do this a lot.

Patricia Arean

Posts: 4
posted in reply to john torous

if the person who created the app os a co-author its assumed he has given permission to have you discuss in a paper . in fact there are good examples in the literature of consumers being authoes on papers. If not an author but discussed in your paper, you need to have him sign a release saying its Ok to talk about his case most peer reciew joirnals have templates for this (particulalry jounrals that publish case reports).

oh and for examples from the mental health field please read KEN WELLS and Bowen CHUNGS work they do this a lot.

Camille Nebeker

Posts: 41
posted in reply to john torous

John, Did you publish as a JMIR Editorial and, if so, can you share the link here?

John Torous

Posts: 10
posted

yes!

Camille Nebeker

Posts: 41
posted in reply to john torous

Ok to post citation?

John Torous

Posts: 10
posted in reply to camille nebeker

This paper was publsihed as the first in patient case series that I hope gains traction. Its falls under the editroial category, although these papers go through peer review.

Torous J, Roux S
Patient-Driven Innovation for Mobile Mental Health Technology: Case Report of Symptom Tracking in Schizophrenia
JMIR Ment Health 2017;4(3):e27
DOI: 10.2196/mental.7911

https://mental.jmir.org/2017/3/e27/