I am trying to find out more information about how researchers and IRBs view the issue of non-participants or "bystanders" in human subject research, particularly around the type of bystander data collection considered permissable, protections for and notification of non-participants. Any laws or regulations that might be applicable in cases of bystanders in research. I know other posts have referred to specific aspects of privacy rules. I'm also trying to get a feel for the degree to which bystander data collection occurs in research studies, the types of data collected and how these issues are viewed by the public and by IRBs.
I also recall discussions about participants wearing signs warning non-paritcipants about data collection. I'm looking at situations where this type of notification would be impracticable.
Any comments are welcome. Likewise with any suggestions for reading on this topic.