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Managing Changes in Social Media-enabled Research


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Browsing: Managing Changes in Social Media-enabled Research


Anonymous

posted

How should I manage changes on Facebook in the middle of a study? Both privacy changes and/or other user changes (e.g. Facebook live).

To what extent do I need to make changes to the IRB or inform participants?

Dr. Doug Latuseck

Posts: 3
posted

When changes to a social media platform result in substantive changes to the data you are collecting, it may indeed warrant a change in IRB documents and/or communication with research subjects. During the course of your study, if more detailed personal information has been gathered or your data now includes data points that when combined with other information, could reveal anything subjects otherwise previously were not consenting to reveal - this would be a time to connect with your IRB administrator for a consult regarding next steps.

Rubi Linares-Orozco

Posts: 34
posted

Like Doug stated, if it results in substantive changes to the data you are collecting, you definetly want to contact your local IRB to consult regarding next steps (amendment, contacting subjects, revisions to consent forms, etc.)

However prior to contacting the IRB you will want to fully understand how the updates to the social platform impacts your original protocol/studydesign, and whether this alters the benefit/risk ratio to participants. For example, you mentioned Facebook Live. How does the Facebook Live function produce different data then what you previously intended to collect?

Also make sure your activities are consistent with the Facebooks API Data Use policy and Terms of Service agreement? https://developers.facebook.com/policy;